News
Updates related to research, organization news, community efforts, and other developments connected to the mission of POU3F3.org.
POU3F3 Foundation Attends Global Genes Allies in Rare Disease Conference
The POU3F3 Foundation attended the Global Genes Allies in Rare Disease Conference in Boston, connecting with advocates, researchers, and organizations from across the rare-disease community.
New Family Survey Highlights What Families Are Experiencing With POU3F3-Related Disorder
A new summary of responses from 37 families highlights the wide range of outcomes in POU3F3-related disorder, along with common challenges involving sleep, gastrointestinal symptoms, behavior, motor development, therapies, and education.
POU3F3 Foundation Joins CombinedBrain and Global Genes
We are pleased to share that the POU3F3 Foundation has joined CombinedBrain and Global Genes, expanding our connection to the broader rare-disease community.
POU3F3 Foundation Receives 501(c)(3) Tax-Exempt Status
We are pleased to share that the POU3F3 Foundation has been recognized as a tax-exempt public charity under Section 501(c)(3) of the Internal Revenue Code.
POU3F3 Foundation Welcomes Two New Scientific Advisory Board Members
POU3F3 Foundation welcomes Leticia Pías Peleteiro, MD, and Encarna Guillén Navarro, MD, PhD, to its Scientific Advisory Board.
POU3F3 Foundation Welcomes New Scientific Advisory Board Members
POU3F3 Foundation welcomes Alison Schonwald, MD, FAAP, and Jae W. Lee, PhD, to its Scientific Advisory Board.
POU3F3.org Has Launched
We are pleased to announce the establishment of POU3F3.org and the beginning of its work to support research, resources, awareness, and collaboration.
