This week, the POU3F3 Foundation attended the Global Genes Allies in Rare Disease Conference in Boston.
The conference brought together patient advocates, researchers, healthcare leaders, and rare-disease organizations to share ideas, learn from one another, and build stronger connections across the community.
We were grateful for the opportunity to represent families affected by POU3F3-related disorder, deepen relationships with fellow advocates, and explore new possibilities for research, family support, awareness, and collaboration.
Thank you to Global Genes and everyone who helped make the gathering so valuable. We look forward to carrying these conversations and connections into the work ahead.
